Some disabled people with complex physical disabilities need good postural care support, otherwise over time their bodies become so twisted, internal organs can become displaced and the person experiences pain most days of their lives.

Here is an example of how a person’s body symmetry can change over time - the images that follow are copyright to Simple Stuff Works Ltd.

Fred Aged 3. Fred had a diagnosis of quadriplegic cerebral palsy and was able to move himself around on the floor.

Fred aged 10. At this age we can start to see the impact of gravity on Fred’s body shape. He sleeps on his side, a position that introduces lots of twists into the body. You can see that his chest is starting to rotate, his spine moving towards Fred’s left whilst the front of his chest rotates round towards his right.

Fred Aged 17. Sadly Fred’s body shape worsens with the onset of puberty and his growth spurt. You can see that Fred’s chest has continued to rotate, the space of his internal organs has been severely affected and he suffered with multiple chest infections. His pelvis has also rotated and is much higher on his right hand side. In fact his pelvis is now tucked underneath his rib cage.

When postural problems are this complex, they can be a silent killer for many people with complex physical disabilities.  

Making people aware of good postural care improves quality of life and can in some extreme circumstances, be lifesaving. Postural care support can include a wheelchair designed for the person’s needs, individually designed seating, a standing frame, night-time supports such as special cushions, to help them sleep straight, regular exercise or active therapy programmes devised by physiotherapists or occupational therapists.

Read the postural care leaflet.

We work with disabled people and families to make them aware of good postural care and to support them to access postural care aids and assessment.

It costs £450 to train 10 disabled people and families so they can be in control of their own postural care needs, equipping them with an understanding of what good support looks like and how to ask local Clinical Commissioning Groups for this support.