Who better to check the quality of services and supports than people who use them? Since 2002, we have been supporting disabled people to check the quality of services. We expanded our work in 2017, to include people with mental health difficulties. This work not only improves people’s lives, but also creates paid employment for individuals.

Quality of Life Standards

Our quality checking team uses the Quality of Life Standards to measure how a service enables an individual to have good quality of life. These standards, launched by former Care Minister Norman Lamb in June 2014, aim to raise people’s expectations about what a good quality of life really means. The standards have been written by over 650 children, young people and adults with learning disabilities and autism, in partnership with their peers with physical disabilities and mental health difficulties.

The standards focus on:

  • Equal citizenship The standards are based on a model of equal citizenship where disabled people are seen and respected as equal citizens in society, being integrated into the community as active participants.
  • Personalisation The standards are not a set of service standards; they are based on the assumption that people decide what support they need to be independent, who will provide that support, and where and when that support will be provided so it is timely and meets their particular needs.

 Our team uses the standards to check people's quality of life in different services including:

  • where people live (in their own tenancy, a residential or nursing home)
  • short breaks services
  • day services
  • forensic settings

We also work with individuals who are part of the transforming care programme to improve health and care services so that more people can live in the community with the right support.

Quality of Health Principles

Our team of people with lived experience also check the quality of patient experience in a range of NHS settings including GP practices, general hospitals, mental health hospitals, dentists and pharmacies. The team uses the Quality of Health Principles to carry out these checks.

Working with NHS England and self-advocacy organisations, we are working on a national quality checking toolkit which will enable people with learning disabilities to check the quality of local health services.

How we can work with you:

If you are interested in commissioning us to undertake a quality of life review, email us at [email protected]

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